Multiple Sclerosis

 

The Multiple Sclerosis (MS) team provides specialist nursing and medical management of patients with MS across the Exeter, Mid and East Devon. The team works closely with other MS services in the South West region and especially the North Devon MS Team.

Multiple sclerosis is a neurological condition which affects the brain and spinal cord, causing a wide range of symptoms, including problems with vision, arm or leg movement, sensation or balance.

Care extends from diagnosis, when an education programme is offered, throughout the patient journey to a fully integrated care approach if this is required. The team consists of consultant neurologists; MS clinical nurse specialists and a MS service co-ordinator.

More on what we do

The team support people with MS throughout their MS pathway with an integrated, personalised approach.

MS is a lifelong condition. Symptoms can be minimal or can have a more significant impact on how a person functions. Each person’s experience and symptoms are unique.

There's currently no cure for MS, but the team’s emphasis is on guiding people to manage their lifestyle and symptoms as best they can. This involves regular exercise, healthy eating and being alert to changes in their body and taking appropriate action.

The team will also advise on specific symptom management and the appropriate use of drug therapies. A broad based research portfolio allows patients to contribute to all manner of MS related research projects including clinic trials of novel therapies in development.

The team is actively involved in both the education of patients, medical and health care professionals in training. They also contribute to an established education program including a formal lecture schedule at the University of Exeter Medical School.

Treatments

Care ranges from establishing a diagnosis, providing symptomatic management to provision of all recognised and NICE approved disease modifying therapies where appropriate. The use of disease modifying therapies forms the main focus of management in relapse prevention and is achieved with well formulated local guidelines to ensure safe, monitored use of the correct therapies at the correct time.

Weekly neuro-radiology meetings facilitate patient specific discussions with radiological investigations providing a concrete platform for complex clinical decision making to facilitate access to centrally (NHS England) funded costly Disease Modifying Therapies.

Symptomatic care is directed where needed and is undertaken with a large element of support from community based health care professionals. The two MS Clinical Nurse Specialists work closely with GPs, community physiotherapists, occupational therapists, speech and language therapists, bladder and bowel care service, community matrons and psychologists. Support and advice is provided through a person’s disease trajectory.

Our team

Louise Jarrett, MS Clinical Nurse Specialist RGN PhD

Catherine Petherick, MS Nurse RGN, BSc ( Hons)

Jayne Tolliday, James MS Service Co-ordinator

Dr Timothy Harrower, (Consultant Neurologist, MSologist, Senior Clinical Lecturer, MS researcher and MS Service Clinical Lead)

Other consultant neurologists:

Prof Nick Gutowski, Dr Kevin Gormley, Dr Ibrahim Imam, Dr Sonali Dharia, Dr Mark Fish, Prof Adam Zeman and Dr Chris Price.

Where to find us

RD&E Wonford, Barrack Rd, Exeter EX2 5DW

Our Neurologists are based at the RDE.

Infusion therapies are undertaken on Cherrybrook Ward and occasionally on the Neurology Ward (Bolham) – both on the Ground Floor, B Template.

The MS Nurses are based at Mardon Neuro-Rehabilitation Centre, Wonford Road.

Contact us

MS Nurse Advice Line: 01392 208588

MS Co-ordinator: 01392 208584

Dr Timothy Harrower: 01392 402455 / timothy.harrower@nhs.net

Neurology Consultants: can be contacted via their individual secretaries - please contact the General Switchboard on 01392 411 611 and ask for the Department of Neurology. 

Community services

The Neurologists and the MS Nursing team hold clinics at Mardon and in the community hospitals.

Clinics

A mixture of face to face clinical appointments, telephone consultations and video calls allows the team to assess and provide the level of support patients, their family and carers require.

Co ordinated, comprehensive care and management is achieved through weekly multidisciplinary clinics.

Supporting you

The MS Nurse Advice Line is available for all patient and Health Professional queries: 01392 208588.

Exeter has an MS Therapy Centre which is part of a National Charity.

They provide support and advice, hold information days, exercise classes, physiotherapy sessions and offer alternative treatments. 

Website: www.msntc.org.uk / southwestmscentre.co.uk

Address: West Grange, Clyst Heath, Exeter EX2 7EY telephone 01392 447411

The MS Society have a local group in Exeter and surrounding areas.

www.mssociety.org.uk/care-and-support/local-support/local-groups/exeter-group

TalkWorks

This is a free, confidential, NHS talking therapy service for adults, offering effective treatments and therapies, including Cognitive Behavioural Therapy (CBT).

Website: www.dpt.nhs.uk/locations/talkworks-depression-and-anxiety-service-exeter

Information for healthcare professionals

Our MS Nurse Advice Line can be contacted on 01392 208588.

The MS Trust provides online information and conferences for healthcare professionals www.mstrust.org.uk/health-professionals

Health care training programs are offered via the MS academy multiplesclerosisacademy.org

Online nurse training can be achieved via www.msnursepro.org

Referrals

GP’s can refer patients to neurologists via the choose and book system.

The MS nurses take direct referrals from GP's for people with a confirmed diagnosis of multiple sclerosis.

If the diagnosis is uncertain or the person is new to the RDE MS nursing service, a neurology opinion should be sought first.

The direct dial number for the MS nurses is: 01392 208588

The direct dial for the MS coordinator is: 01392 208584

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