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RD&E Cystic Fibrosis patients receive top quality care

 

Children with Cystic Fibrosis (CF) cared for at the Royal Devon and Exeter are receiving some of the best care in the country according to statistics published in a recent report by the UK Cystic Fibrosis Trust. 

 

Although not presented as a league table the report findings suggest that high healthcare test scores for CF patients, such as their BMI (Body Mass Index) and FEV (Forced Expiratory Volume), reflects better patient health achieved from specialist hospital treatment, care and support. The Royal Devon and Exeter NHS Foundation Trust achieved the top score for BMI and came eighth for FEV out of the 26 specialist CF centres evaluated in the report.

 

The CF Trust is using this data to improve understanding of the disease, evaluate the models of treatment provided and drive up standards of clinical care across the UK.  

 

RD&E Consultant Paediatrician Dr Patrick Oades said: “We are very proud of our results. Our multidisciplinary team – involving doctors, nurse specialists, a dietician, physiotherapists, and a psychologist – although stretched, work extremely hard to provide the highest quality care within the resources available for our young patients. This gives them the best chance of leading normal lives for as long as possible”.

 

Cystic Fibrosis is the UK’s most common, life-threatening inherited disease affecting over 9000 people in the UK. Only half of those living with Cystic Fibrosis are likely to live past their late 30s.

 

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